The beginning is an especially critical time and often confusing. Parent(s) might have a tight feeling in their chest and express their worry their child isn't reaching certain milestones.
Well meaning family members and friends rationalize concerns and sometimes pediatricians can dismiss early signs with a "let's wait and see." The problem with the "wait and see" approach is that if you child has Autism...you are losing precious time. There can be long wait lists for getting a diagnosis and obtaining services. The younger the child, the faster their brain is developing and learning.
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​The Center for Disease Control and Prevention (CDC) has changed the Autism rates to 1 in 54 children are diagnosed. If you suspect Autism or your early intervention therapists recommend it, please seek a diagnosis as soon as possible.​
Here are 5 things you can do today to get this process started
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1. If you suspect your child is delayed or showing signs of Autism, please make an appointment as soon as possible. Due to the high statistics, you may be put on a wait list. Call a bunch of providers. Narrow it down and make an appointment with a couple of providers. Check in to see if there are any cancellations, persistence can pay off sometimes. So let's begin with the first step.
Click here to download a free guide of local providers.
Click here to download a free guide on the types of testing that might be administered and what they evaluate.
2. In the meantime...you don't need an official diagnosis to start early intervention to begin getting services.
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3. Knowing the vocabulary and acronyms that are associated with therapies will help you so much in making better decisions for your loved one.
Click here to download a list of vocab words.
Click here to download a list of acronyms.
4. Set up Medicaid in advance so you will be ready to sign up for additional therapies. If you're having difficulty getting services, turn to PA Health Law Project or the Peal Center who can teach you to advocate for yourself or your loved one.
5. Find a parent or caregiver support that aligns with your situation. We are fortunate here in the Lehigh Valley to have a variety of support groups that strive to meet the needs of many families and interests. Some are set up for families to share their challenges, some invite speakers for informational presentations and some cover specific niches like grandparents who are caregivers. Finding a support group where you feel the most comfortable and that meets your needs can help you keep moving forward towards progress.
Click here to find a local support group.
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