Why might a parent might consider Lifesharing for their adult child?

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Lifesharing is a model where an adult with a disability lives with a trained caregiver or “host family” in a family-style home.

Parents might consider it because it can:

Pros:

• Safe, supportive home environment: The adult has consistent support for daily living skills, healthcare, and social needs.

• Social integration: Living with a host family can promote friendships, community participation, and reduce isolation.

• Individualized care: Host families often tailor routines and supports to the individual’s preferences and abilities.

• Relief for parents: Provides peace of mind, especially as parents age or if care-giving becomes overwhelming.

• Respite option: Short-term placements can give families breaks from care-giving duties.

• Matched Interests: Locally lifesharing programs do their best to match individuals based on interest and preferred lifestyle.

• Can promote more independence: Moving to a new situation can motivate people with intellectual disabilities to a more independent mindset especially if they are used to caregivers stepping in to take care of everything or prompt dependent.

Cons:

• Adjustment challenges: Moving from a lifelong home can be stressful for the adult.

• Emotional attachment: Leaving a parent’s home can be emotionally difficult for both parties.

• Limited control: Parents may have less influence over day-to-day routines compared with home care.

• Finding the right match: A good host-family fit is crucial and can take time.

2. Is Lifesharing permanent?

• Lifesharing can be long-term but it is not automatically permanent. Individuals participating in lifesharing may experience life changes that impact your loved one. 

• Some adults stay in Lifesharing for life; others may transition to independent or supported living options depending on their growth, health, or preferences.

• Families should also have backup plans, such as group homes, independent living programs, or supported apartments, in case the Lifesharing placement ends or circumstances change.

3. Using Lifesharing as respite

• Lifesharing can be used temporarily for respite or emergency relief.

• Some programs allow short-term stays for planned breaks or during caregiver illness.

• This can also help the adult gradually adjust to living outside the parent’s home without the stress of a sudden permanent move.

4. Independence vs. staying at home

• Moving out can encourage independence: With the right support, adults can gain more skills with self-care, social skills, and decision-making.

• Staying at home: For some, living with parents may maintain emotional security and prevent regression, especially if the adult has higher support needs.

• Research suggests that structured opportunities for gradual independence often lead to better long-term outcomes in social and daily living skills.

• Emotional maturity may improve with age-appropriate responsibilities, whether at home or in a Lifesharing setting.

5. Emergency placements vs. planned transition

• Sudden emergency placements after a parent dies are highly stressful and can be traumatic.

• Gradual transitions before a crisis allow the adult to adapt to a new environment, form relationships with caregivers and learn routines, reducing long-term anxiety.

• Planning ahead also allows families to explore multiple options, ensure compatibility, and have legal/financial arrangements in place.

Key Takeaways

• Lifesharing can be a safe, supportive, and social living arrangement for adults with disabilities.

• It can be permanent or temporary, but planning for future housing options is essential.

• Gradual transition, rather than emergency placement, is best for emotional stability.

• Moving out can encourage independence, but the decision should consider the adult’s capacity, personality, and emotional needs.

• Using Lifesharing for respite can also benefit the family without a permanent move.