Getting a Diagnosis for Autism 

What Caregivers Need to Know to Start Building Services

​

Why is a Diagnosis Important?

A formal diagnosis is often the first step to getting support like:

• School services (IEPs, special education)

• Therapies (speech, occupational, behavioral)

• Government programs (Medicaid, SSI, waivers)

• Help for you as a caregiver

Step-by-Step: How to Get a Diagnosis

1. Know the Signs

If your child:

• Has delays in speech or learning

• Struggles with communication or social skills

• Repeats actions or has strong routines

• Has difficulty with daily tasks

…it may be time to talk to a professional.

2. Talk to Your Pediatrician or Doctor

Do not allow them to ask you to wait and see. Don't let them talk you out of it.

Ask for:

• A developmental screening

• A referral to a specialist (like a psychologist, neurologist, or developmental pediatrician)

3. Get a Full Evaluation

A full evaluation may include:

• Developmental history

• Cognitive testing (IQ test)

• Autism-specific tools (like ADOS)

• Speech, motor, and behavior assessments

Tip: Make sure the provider gives you a written report with a diagnosis.

Who Can Diagnose?

• Developmental Pediatricians

• Clinical Psychologists

• Pediatric Neurologists

• Licensed Clinical Social Workers (in some cases)

After Diagnosis: Next Steps

✔ Get Services Started

Bring the diagnosis report to:

• Your school district (for IEP testing)

• Medicaid or private insurance for therapy coverage

• Applying for intake of therapies

• Supports broker for FSS funding, waivers, etc.